What will I do?
What
is the Fibromyalgia Day Program
The Fibromyalgia Program at St. Joseph's Health
Care London is a multi-disciplinary treatment program for people with Fibromyalgia.
The focus of the program is not medical. Instead we teach people to learn
to cope with their symptoms and improve their quality of life. Although
many patients achieve a reduction in their symptoms, at present there is
no known cure. Thus the goal of the program is to reduce the degree of suffering
and life disruption associated with this disorder. Participants in the program
must be ready to learn self-management techniques in order to:
-
Increase their ability to participate in work, household and social
activities without increasing pain.
-
Modify
their emotional reaction to pain and its consequences on self-esteem,
marital relations, family life, ability to work and social involvement
-
Achieve
greater control over their symptoms
To
be considered for the program, you must fulfill the following criteria:
-
Have
a diagnosis of Fibromyalgia by a Rheumatologist
-
Be
available for a full-time four week interval
-
Accept
a treatment approach that is geared toward improved function and coping
rather than short-term pain relief
-
Be
willing to eliminate the use of certain pain medications (e.g., those
containing codeine) and tranquillizers (e.g., diazepam)
-
Be
willing to eliminate short-term pain relief methods (e.g., heating pads,
massage, TENs, etc.)
-
It
is important that spouses or significant others and children (older
than 13 years) be willing to attend one 90 minute session per week during
the month a participant is in the program. These sessions are designed
to teach family members how they can better help the person with Fibromyalgia.
How do I enter the program?
The
first step in entering the program is a referral to one of our rheumatologists
who will assess your medical condition and verify your diagnosis of Fibromyalgia.
After that, arrangements will be made for you to see one of our psychologists
who specialize in helping people cope with medical illnesses. If you, the
rheumatologist and the psychologist all agree that the program fits your
needs, you will be placed on a waiting list for admission.
Though
generally accessible to all fibromyalgia patients, the Fibromyalgia Program
has a specific track for Workers' Compensation cases. Accordingly, such
individuals will receive preferential access to the program.
Where is the Program Located?
The
program is located in the Monsignor Roney building, at the corner of Cheapside
and Richmond streets, at St. Joseph's Hospital, London, Ontario, Canada.
If
you live outside of London, inexpensive accommodations are available at
several locations near the hospital. Before entering the program, you will
be provided with information regarding accommodations, costs and how to
make reservations. It is your responsibility to arrange accommodation prior
to entering the Program.
Our
treatment team includes a number of health care professions:
We
work together to help you get the most out of your experience in our program.
What are the Physical
Demands of the Program?
In
order to participate in the Fibromyalgia Program, patients must be able
to tolerate the activity level involved. If you feel unable or unwilling
to maintain this level of activity on a daily basis for the full four weeks
of the program, you may not wish to participate at this time. Please
consider your ability to meet this requirement carefully. A description
of these physical demands follows:
-
You
must be able to tolerate being active for a full 7½ - 8 hour
day. Each day the program starts at 8:30 or 9:00 a.m. and continues
until 4:00 p.m. Although some breaks occur through the day, most of
the day is taken up by specific activities (e.g., physiotherapy, occupational
therapy, group education/ therapy sessions, individual appointments,
independent reading, etc.). In addition, some "homework" done most evenings.
-
Physiotherapy
sessions are 1 - 1½ hours and occur daily. This time includes
cardiovascular exercises, muscle strengthening exercises and stretching
exercises. Although these start out at a low level, they are gradually
increased as the program progresses. For example, you must be able to
start at about 5 minutes on a treadmill (walking) and be willing to
increase that to about 20 minutes by the end of the program. Similar
goals are set for the stretching and strengthening exercises.
-
There
is a graded activity component in occupational therapy sessions. These
sessions are also held daily for one hour. During this time, you will
be required to increase your tolerance for various activities using
proper body mechanics for sitting and/or standing.
-
Pain
management group sessions are educational presentations which teach
various psychological coping techniques (assertiveness, attitude change,
reducing pain "body language," etc.). These sessions require that you
can sit for a period of 1½ hours. Although there is a 5 minute
break in the middle and you can stand up and stretch when you need to,
you must be able to sit for fairly long intervals.
-
Although
participants are encouraged to "pace" their activities - interspersing
rest and activities and changing from one activity to another - there
is no opportunity to nap during the day. This will be a problem if you
feel that you must nap during the day and cannot manage without it.
-
The
program also requires that you are willing/able to concentrate for fairly
long periods of time (e.g., during educational sessions). Although we
don't expect participants to remember every detail, it is important
that you can listen and understand the material being presented.
How Much Time is Required?
You
are expected to be available on a full-time basis Monday to Friday (9:00
a.m. to 4:00 p.m.) for the four weeks of the program. After this intensive
phase, participants are expected to attend four one day follow-up sessions
(at one, and six months) to review their progress.
Each
day in the program will involve a structured series of sessions or activities
in which you will learn skills to manage your Fibromyalgia and your lifestyle.
Group sessions will involve training in the following areas:
-
Education
about Fibromyalgia
-
Changing
how you express pain and illness
-
Communication
Skills (Assertiveness)
-
Cognitive
Therapy (changing the way you think and feel about yourself, your situation
and your future)
-
Daily
Exercise Program (cardiovascular, stretching, strengthening)
-
Graded
Activity Program (increasing your tolerance for activities while controlling
pain and fatigue)
-
Relaxation
Training
-
Education
about proper posture and body mechanics
Each
of these components of the program are viewed as an integral part of an
overall approach to managing your Fibromyalgia. You must be willing to make
a commitment to mastering all of these skill areas and to continuing their
use on a long-term basis.
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Last Updated: Wednesday, 21-Apr-2004 13:49:52 EST