Caregiving Survey

A family caregiver is a person – family member, friend, neighbour - who provides important personal, social, psychological and physical support, assistance and care, usually without pay, for people in need of support due to frailty, illness, degenerative disease, disability, or end of life circumstances. 

  • A family caregiver doesn’t have to be living with the person they are supporting.
  • A family caregiver doesn’t have to be related.
  • A family caregiver can be any age.
  • A family caregiver can provide support and care for short periods of time (e.g., days) or for extended periods of time (e.g., years). 

Family caregivers can face challenges and obstacles while trying to care for their family and friends. The purpose of this survey is to help us to better understand your experience as a family caregiver so that we can better support you and improve your experience. The terms “family caregiver” and “caregiver” are used interchangeably.

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1. How often were you able to communicate with your family/friend’s healthcare provider when you needed to?
2. How often did you notice gaps in communication between your family/friend’s health care providers (e.g., doctors, nurses, personal support workers, therapists, etc.)?
3. How often did you receive information about what to do if you were worried about your family/friend’s condition?
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4. If you did receive information, how well did you understand the information provided to you?
5. If you did receive information, how well did you understand what to expect next?
6. If you did receive information, were you clear on who to contact with any follow up questions?
7. How well do you feel supported in your caregiving role by the health care team?
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8. How often were you treated with courtesy and respect by healthcare providers?
9. How often did healthcare providers recognize that you are a family caregiver?
10. How often did you feel meaningfully involved in your family / friend’s care planning by healthcare providers (e.g. discharge planning, goal setting, etc.)?
11. If you didn’t feel involved in your family/friend’s care planning, what were the reasons?
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12. How often did your family / friend’s healthcare providers treat you as a source of knowledge about your family / friend?
13. How often did your family / friend’s healthcare provider ask how you are doing in your caregiving role?
14. How often did you get the support you needed to care for yourself?
15. How often did you get the support you needed for concerns you had about your family / friend’s condition?
16. How often did you receive education/hands-on training about how to care for your family/friend in preparation for leaving the hospital (e.g. transfers, bathing, dressing, catheterization, medication management, medical/health condition, etc.)?
Personal information is collected under the authority of the Public Hospitals Act R.S.O. 1990, CHAPTER P.40 for the purpose of contacting the sender in response to an inquiry. If you have questions about the collection of this information, please contact a Privacy and Freedom of Information Consultant, Mount Hope Centre for Long Term Care, 21 Grosvenor Street, Room WB31, London Ontario, N6A 1Y6. Phone: 519-646-6100 ext. 61418.