Search
Search
4 Search Results:
Contact Lawson Research Institute
Contact us
For general information or Lawson-specific questions:
Phone: 519 646-6005
Email: @email
To reach a member of the Lawson/St. Joseph’s Communications team with a story idea or a media-related inquiry, contact:
Communication and Public Affairs
Phone: 519 646-6100 ext. 66034
Fax: 519 646-6215
Email: comdept@sjhc.london.on.ca
If you need to contact a communicator after office hours (Mon to Fri, 8:30 am to 4:30 pm), call Switchboard at 519 646-6100 and ask them to page the communicator on-call.
Directions and parking
The main office of Lawson Research Institute is located within St. Joseph's Hospital. You can find a map to St. Joseph's Hospital along with Parking information below.
Lawson Research Institute inside St. Joseph's Hospital
268 Grosvenor Street
London, Ontario, N6A 4V2
Parking options
For those planning to park at or near St. Joseph’s Hospital, please ensure you leave extra time to do so. Due to the high number of people coming for care at St. Joseph’s Hospital, our two parking garages located on Grosvenor Street and on Cheapside Street are often at capacity Monday to Thursday between 9:30 a.m. and 2 p.m. ‘Lot full’ signs are posted when the parking garage(s) are full. Metered parking is available on the streets around the hospital.
As parking availability isn’t guaranteed at or nearby the hospital, St. Joseph’s encourages patients and family caregivers to consider making alternate travel arrangements when coming to the hospital, such as using public transit, taxi or being dropped off and picked up. Drop off areas are available at Entrance 1 and 2 on Grosvenor Street and Entrance 4 on Cheapside Street.
St. Joseph’s recognizes the frustration the lack of parking availability may cause and apologizes for any inconvenience. Thank you for your patience and understanding while we seek solutions to this issue.
Grosvenor parking garage
Daily rate: Minimum rate of $4 for the first hour and then $2 increments every half hour to a maximum of $8.75 after 2 hours.
Monthly rate: $60.75
There are 989 parking spaces in the Grosvenor Street parking garage.
View a printable map of parking spaces at St. Joseph's Hospital, Grosvenor Street Parking Garage (including accessible spaces).
The parking garage entrance is located on Grosvenor Street, across the street from Grosvenor Entrance 1. The garage is connected to Mount Hope Centre for Long Term Care through the underground tunnel (take elevators at northwest corner of the garage, see below).
Tunnel access at St. Joseph's Hospital
When visiting St. Joseph's Hospital and parking in the parking garage on Grosvenor Street the safest and most accessible route is through the tunnel. You can access the tunnel from the west end of the parking garage (closest to Richmond Street) by taking the elevators or stairs to level "B". When returning to your vehicle from Zone A you will need to push "T" (for tunnel) in the elevator.
Parking pay stations
Parking pay stations are located on the ground floor of both elevator lobbies located at the north-west and north-centre area of garage.
Pay stations only accept coins and credit cards. To purchase a monthly pass visit the Parking Garage office on the Wellington Street side of the Grosvenor Street Parking Garage, ground floor.
For further information, please call the parking office at 519 646-6100 ext. 65113.
Parking office hours are 8 am to 4 pm, Monday to Friday. Outside those hours, calls are directed to Precise ParkLink Inc. at 1-888-783 PARK (7275). The call centre can also be reached by intercom available on the parking pay machines in the garage's elevator lobby.
Accessible parking spaces
Accessible parking is available on each floor of the Grosvenor Street parking garage at the west end of the garage (closest to the Richmond and Grosvenor Street corner.) These parking spots are located close to the elevator that will take you to the wheelchair-accessible ramp on street level (level 1) or the underground tunnel that connects to both Mount Hope Centre for Long Term Care and St. Joseph’s Hospital.
Limited spots for accessible parking is also available on Wellington Street and on Grosvenor Street across from the Urgent Care Centre entrance (Entrance 2).
Cheapside parking garage
There are 132 parking spaces in the Cheapside Street parking garage.
View a printable map to parking spaces at St. Joseph's Hospital, Cheapside Street Parking Garage (including accessible spaces).
This is the closest lot for outpatients with appointments in Zones C and D of the hospital (Medical Imaging, Roth McFarlane Hand and Upper Limb Centre, Hand Therapy, Breast Care Centre, Rheumatology Centre, Physiotherapy Therapy, Occupational Therapy, WSIB Specialty Clinic, Shuttleworth Auditorium).
The entrance to the lot is on Cheapside Street just east of Richmond. It is open from 5:30 am to 5:30 pm, Monday to Friday, and closed on weekends. The elevator in the garage connects directly with the Francis and Madeleine Saul Medical Imaging Centre (Level 0) and the G. A. Huot Surgical Centre (Level 1). For appointments in Zone D, exit the parking garage elevator on Level 0 and walk across the lobby to the west side.
The parking pay station is located by the main elevators next to the gift shop in the Zone C lobby.
Parking meters at St. Joseph's Hospital
There are many city parking meters located within walking distance to St. Joseph's Hospital.
Rates are posted on the meters.
Street parking at St. Joseph's Hospital
Some of the residential streets that are within walking distance to the health centre offer one or two hour parking. Overnight parking is not permitted.
Please be courteous and do not block driveways.
Courteous parking to ensure maximum lot capacity
Please be aware that the City of London enforces parking regulations across all of St. Joseph’s sites to ensure patients, visitors, staff and physicians have adequate parking. All users of our parking facilities are asked to pay attention to parking regulations and how you park your vehicle.
As well, those who park for more than 10 minutes in patient drop-off designated areas, in handicapped parking without a permit, at loading docks, and other restricted areas will also find their vehicles being ticketed.
Thank you for respecting our parking regulations. If you have any parking questions please contact Precise ParkLink Inc.
Email: @email
Phone: 1-888-783 PARK (7275)
Public transit to St. Joseph's Hospital
St. Joseph's Hospital is conveniently located in a central location, with easy access to public transportation. Bus stops are located along Richmond Street and close to the Cheapside Street entrances. Contact the London Transit Commission at 519 451-1347 for rates and times.
The following London Transit bus routes will drop you off near entrances to St. Joseph's, see the London Transit trip planner and route schedules and real time LTC bus route tracking for more information:
- 6 Richmond
- 13 Wellington
- 1 Kipps Lane
- 21 Huron Heights
St. Joseph's is also just a few blocks north of Oxford Street, providing easy access from the Oxford St. bus routes.
Institute Team
Administration
Research Administration: responsible for the Lawson Approval process, delivery of Lawson’s Quality Assurance and Education program for clinical research, contract negotiation and approval for research, including industry-sponsored and investigator-initiated contracts, and fee-for-service support through Lawson Clinical Research Services.
Finance: responsible for the ongoing management of all research grants and contracts awarded to Lawson researchers; works closely with researchers, administrative staff, and funding sponsors to ensure adherence to funding guidelines and policies; manages the post-award functions for all research grants and contracts at the institute, including financial reporting, financial analysis and forecasting, cash flow and expenditure monitoring, compliance oversight, audit facilitation, and communicating with funding sponsors.
Research Human Resources: responsible for providing human resource services for Lawson researchers and staff, including acting as liaison between hospital Human Resources (HR) departments and Western faculties; the health and safety component facilitates standardizing safety processes and ensuring relevant legislation and safety standards are being met.
Research Operations & Technical Services: responsible for organizing the operations of Lawson’s vivarium/animal care facilities and services, as well as coordinating laboratory space, renovations, equipment and maintenance aspects of Lawson.
Research Informatics: responsible for supporting clinical researchers who have software development and database requirements by providing robust infrastructure to support their research activities, on a safe, secure IT platform to ensure patient confidentiality for clinical activities; and providing assistance with application development, data collection, data extraction, archiving, collaboration, analysis and reporting.
Strategic Planning and Development
Communications & External Relations: responsible for building and managing the Lawson brand and reputation, including public relations, media relations, marketing, special events, web presence and social media, advocacy, strategic planning and issues management.
Grant Development: responsible for facilitating the full spectrum of research grant submissions, including grant coordination for large government grant applications; development of grantsmanship; dissemination of new information pertaining to research and training grants opportunities; and, institution submissions and sign-off processes for CIHR, CFI, ORF, etc.
Business Development: responsible for providing services to Lawson investigators to facilitate the transfer of medical research from the laboratory to commercial use, including assisting with patenting new discoveries and finding commercial partners for collaborative research and licensing. Expertise is offered in the areas of intellectual property protection, marketing, licensing agreements and formation of start-up companies. Commercialization opportunities at Lawson are managed through WORLDiscoveries®, the business development arm of London’s extensive research network and the bridge between local invention and global industry.
Research Infrastructure: responsible for the development and implementation of a research master plan for all Lawson sites, including identifying potential research space solutions to meet the evolving needs of researchers, and working with the Facilities Planning departments at both hospitals to operationalize research space plans.
Institutional Research Data Management Strategy
Table of Contents
3 Research Data and Importance of Research Data Management. 2
6.1 Awareness-Raising Activities. 4
6.3 Promote and Support RDM Practices. 5
6.4 Access to RDM Tools, Resources, and Infrastructure. 5
6.4.1 Information Technology (IT) Infrastructure. 5
9 Indigenous Data Considerations. 8
10 Other Relevant Strategies and Policies. 9
10.1 London Health Sciences Centre Corporate Policies and Procedures. 9
10.2 St. Joseph’s Health Care London Policies and Procedures. 10
10.3 External Strategies/Policies. 10
11 Acronyms & Abbreviations. 12
Introduction
The federal research funding agencies (Tri-Agency: Canadian Institutes of Health Research (CIHR), Natural Sciences and Engineering Research Council of Canada (NSERC), Social Sciences and Humanities Research Council (SSHRC)) released a Research Data Management Policy in March 2021. They have set a deadline for March 1, 2023, for each postsecondary institution and research hospital eligible to administer CIHR, NSERC, or SSHRC funds to develop an institutional strategy for Research Data Management (RDM), and notify the agencies when it has been completed. Additionally, for specific funding opportunities, the agencies require data management plans (DMPs) to be submitted to the appropriate agency at the time of application. Furthermore, grant recipients are required to deposit into a digital repository all digital research data, metadata, and code that directly support the research conclusions in journal publications and pre-prints that arise from agency-supported research.
Lawson Research Institute is the research arm of St. Joseph’s Health Care London. Lawson recognizes the impact of funding on research, the RDM requirements and obligations implemented by funding agencies, and the importance of research data management. Lawson is fully engaged in developing and implementing the Institutional RDM Strategy.
The Tri-agency is committed to funding research that is conducted to the highest professional and disciplinary standards, is performed ethically, makes effective use of public funds, is verifiable and replicable, and that makes results as accessible as possible. The agencies support the FAIR (Findable, Accessible, Interoperable, and Reusable) guiding principles and accordingly advocate an increased ability for research data to be archived, found, and responsibly reused to fuel discoveries and innovation across multiple disciplines and geographical borders. Research data management is, therefore, a necessary component of achieving research excellence.
Research data is the data used as evidence to support and validate research findings or results and used as input for analysis. Research data is derived from source data. This can include information extracted from original sources such as clinical systems, experiments, simulations, etc. It is to be noted that any data containing identifiable personal information must remain private and confidential.
Research Data Management is the organization and maintenance of research data throughout the entire research project lifecycle. This includes setting up protocols before initiating data collection, and then collecting, tracking, and creating backups of the data during study execution, and eventually, data sharing, archiving, and publishing upon project completion. This is not a new concept. In fact, Lawson researchers have been employing these processes and procedures and performing RDM in varying capacities. However, with the new policy requirements, obligations for regulatory compliance, concerns for privacy and security, initiatives for data sharing and reproducibility, a push for the FAIR principles, the open science movement, and a need to elevate the availability of Canadian data on the world stage, it is imperative for Lawson to implement and support RDM best practices and procedures.
The Lawson institutional RDM strategy is a concise and directive document that outlines how Lawson will increase its capacity to support and foster a culture of effective research data management. This institutional strategy is a collaboration between internal and external key stakeholders. It will support Lawson researchers in managing their data throughout the research lifecycle using appropriate data stewardship and data management practices.
This strategy applies to all research data generated and collected by Lawson researchers, research trainees, and research staff, whether the research was funded by the Tri-agency or other funders, or self-funded.
This strategy does not propose the creation of new or amendment of existing hospital policies.
The RDM Advisory Committee supports establishing and implementing the overall institutional strategy. Drafting of the institutional RDM strategy is being led by the RDM Project Team, comprising Research Informatics, Grants Development, Quality Assurance, and Research Administration team members through Lawson and (jointly with London Health Sciences Centre Research Institute) through a shared Office of Research Services
The RDM Advisory Committee, comprising key institutional stakeholders, acts as a resource to the RDM Project Team on the planning, implementation, and ongoing evaluation of the strategy. These stakeholders include Lawson’s Chief Operating Officer, representatives from the hospital Privacy Offices, Information Technology Services, LHSC Data Governance, Research Ethics Boards, Western Libraries, Lawson Approvals, Grants Development, Quality Assurance, Research Directors, research teams, and research trainees. The RDM Project Team consults with other stakeholders and community partners as needed to support the RDM rights of all stakeholders involved in research.
The Advisory Committee further understands that as the research landscape advances, the RDM requirements and obligations implemented by Tri-agency and other funders may change; as RDM progress is made as outlined in this strategy, the resources and priorities will also change, necessitating re-evaluation of RDM maturity and revision of this RDM strategy. Hence, the strategy will be considered a living document that will be reviewed on an annual basis by the Advisory Committee.
Lawson aims to meet RDM requirements and implement RDM best practices and processes to fully support its researchers and research communities. Through the implementation of the institutional RDM strategy, Lawson will provide sustainable support and solutions by documenting existing support and processes, formalizing responsibilities, and expressing and promoting RDM best practices. Lawson aims to support researchers in establishing and implementing data management practices consistent with ethical, legal, and commercial obligations.
6.1 Awareness-Raising Activities
The Lawson research community was engaged through various means to raise awareness about the Tri-Agency RDM policy requirements and RDM.
Data champions were recruited from different departments to help promote the value of RDM and engage with various communities.
The research community was invited to participate in an anonymous survey to understand the current state of Lawson in developing and allocating human, organizational, infrastructure, and financial resources for Research Data Management within the Lawson research community.
The RDM Maturity Assessment, based on Maturity Assessment Model in Canada (MAMIC), was conducted to take stock of the current services and identify areas for future growth and development. It helped to capture the perceptions of the current RDM service offerings.
Lawson also established an internal RDM website to provide information about research data management, Tri-Agency RDM Policy requirements, data management plans, institutional RDM strategy, frequently asked questions, and resources. This website provides up-to-date information and keeps the research community informed.
The RDM Project team hosted webinars on research data management, data management plan templates, and DMP Assistant.
The objective is to assist the broader research community in understanding the institution’s current and planned RDM capacity, challenges, and needs. Therefore, to facilitate an ongoing dialogue and collaboration on the advancement of RDM on a national level, Lawson has created web pages dedicated to RDM on an external-facing website.
Lawson has research data management expertise and skills within different departments. However, a centralized and integrated approach to support RDM is required. Infrastructure support for large data sets can also generate some human resources issues. New research data management approaches also require the upkeep of skills, techniques, processes, and solutions. Accordingly, appropriate knowledge and skill development will be needed for the team to support RDM.
6.3 Promote and Support RDM Practices
Lawson will continue to support researchers and their staff by encouraging a data management culture and an environment that promotes and facilitates research data management. Lawson’s Research Informatics and Grants Development teams will provide Data Management Plans and data deposit consultation services.
6.4 Access to RDM Tools, Resources, and Infrastructure
6.4.1 Information Technology (IT) Infrastructure
Lawson’s IT infrastructure is managed and supported by the hospitals’ Information Technology Services (ITS) department.
ITS provides access to OneDrive, Teams, SharePoint, Webex, Office 365, MS Project, and many more solutions and platforms available for research purposes.
All systems available to Lawson researchers through ITS are backed up on a nightly and monthly basis. Backups on tapes are also stored at an off-site location for disaster recovery.
Lawson-supported servers are hosted at the secure ITS data centre. These servers are configured and secured as per hospital guidelines.
Various safeguards have been implemented and documented to prevent, detect, and mitigate the effects of computer viruses, worms, or other potentially harmful software code on study data and software.
The virtual servers hosted at the hospitals’ data centre employ vMotion. It allows IT to move running virtual machines from one physical server to another without impacting end-users. vMotion keeps the IT environment up and running, providing unprecedented flexibility and availability. It also decreases downtime and improves reliability by supporting business continuity and disaster recovery procedures.
Lawson researchers have access to many support services through different departments.
The RDM Project team hosts workshops related to RDM and DMPs.
The Research Informatics team hosts workshops to build capacity in researchers to accelerate the build of high-quality data capture projects.
Quality Assurance and Education Program hosts ‘Lunch ‘n Learn’ sessions related to policies and regulations, and educates researchers and staff on compliance requirements and best practices.
ITS has partnered with Microsoft and peer Ontario hospitals to develop Live Virtual Training sessions to allow learning at an individual pace.
Several tools are available to Lawson researchers to support their RDM requirements.
REDCap is a Research Electronic Data Capture web-based tool for creating and managing online database applications and surveys. Hosted at the hospitals’ data centre, Lawson Research Informatics administrates this secure platform to meet the diverse research needs of the Lawson community.
Lawson supports its researchers by providing robust infrastructure to support their research activities on a safe, secure IT platform to ensure patient confidentiality for clinical activities; and by providing hosting for customized web applications for research studies. Lawson manages several research applications on Windows and Linux servers, securely hosted at the London hospitals’ data centre.
File Safe and M365 are the recommended tools available to Lawson researchers to securely transfer files, large and small, including confidential or patient-identifiable information, instead of using email attachments.
DMP Assistant is a national, online, bilingual data management planning tool to assist researchers in preparing data management plans (DMPs). Lawson researchers and their team members can create an account on this platform. They can select ‘Lawson Health Research Institute’ as their organization to develop their discipline or study-specific Data Management Plan through a series of critical data management questions supported by best-practice guidance and examples.
Lawson researchers also have access to the Lawson DMP Template that guides them through all the elements of a data management plan and provides example answers to several questions.
Canadian Repository Options
Borealis, a publicly accessible, secure Canadian data repository system managed by Western Libraries, allows for data to be released and shared openly or privately with precision at the file level using Dataverse software. This is available to Lawson researchers who are faculty members at Western University.
Lawson researchers can utilize the national Federated Research Data Repository (FRDR) platform to deposit data or to search for and download data across Canadian repositories. This platform can efficiently ingest datasets of any size, and preservation processing is done automatically. Research data can be ingested, curated, preserved, discovered, cited, and shared from this single platform.
International Repository Options
The Directory of Open Access Repositories (OpenDOAR) provides a quality-assured list of open-access repositories worldwide. OpenDOAR staff harvest and assign metadata to allow categorization and analysis to assist the wider use and exploitation of repositories. OpenDOAR is based at the University of Nottingham.
Re3data.org is a global registry of research data repositories that covers research data repositories from different academic disciplines. It includes repositories for the permanent storage and access of data sets to researchers, funding bodies, publishers, and scholarly institutions. Re3data.org promotes a culture of sharing, increased access, and better visibility of research data.
Several key stakeholders were identified internally and externally from the organization. The RDM Advisory Committee was formed in March 2022 to include relevant stakeholders who are directly impacted by the implementation of the Institutional Strategy. This committee included stakeholders from Executive Administration, Research Informatics, Grants Development, and representatives from London Health Sciences Centre and St. Joseph’s Privacy Offices, Information Technology Services, LHSC Data Governance, Western University’s Health Sciences Research Ethics Board, Western Libraries, Lawson Approvals, Quality Assurance, Research Directors, Research teams, and a Postdoctoral Fellow. The Advisory Committee meets monthly to help raise awareness, assess institutional readiness, and serve as a communication medium. Appropriate delivery mechanisms for outreach were implemented to engage the Lawson research community. The input and feedback from the research community were solicited through surveys, webinars, online RDM sites, email, ad hoc meetings, etc.
Perceiving the significance of collaboration with external stakeholders and community partners, the RDM Project Team has been reaching out to Indigenous Cancer Care Unit Clinical Institutes & Quality Programs and the Office of Inclusion & Social Accountability (Indigenous Health) at LHSC, and the Knowledge Exchange, Impact & EDI-D in Research office and Indigenous Health Lab at Western University for finding a common intersection of work and continued consultation and consideration concerning RDM training and processes.
Lawson Research Institute supports researchers in adopting and complying with ethical, legal, and commercial obligations through various means. Research oversight and compliance are overseen by Western University’s Health Sciences Research Ethics Board (HSREB), Clinical Trials Ontario (CTO), and Ontario Cancer Research Ethics Board (OCREB). They also oversee the ethical conduct of research studies involving human participants. Additionally, the Tri-Agency’s Tri-Council Policy Statement: Ethical Conduct Involving Humans – TCPS2 (2018) provides guidance to researchers conducting research involving human participants.
Lawson’s Quality Assurance and Education Program (QAEP), which is a part of Lawson’s Quality Management System (QMS), facilitates research compliance across the organization through Standard Operating Procedures, Guidance Documents, Lunch and Learns, Clinical Research Training, Quality Assurance Reviews as well as providing research support to Investigators, research teams and other stakeholders on the regulations, policies and best practices governing clinical research.
Research compliance with legal and commercial obligations falls under the Lawson Research Approval Systems (Contracts) and WORLDiscoveries, a joint business development arm for Lawson, Western University, and Robarts Research Institute. Lawson’s Contracts team is responsible for drafting, reviewing, negotiating, and coordinating all contracts for research under Lawson’s auspices.
Lawson intends to support researchers involved with Indigenous research and ensure that Tri-Agency RDM policy requirements are addressed. We recognize that there are many Indigenous communities, peoples, cultures, languages, and protocols and therefore no singular approach can be applied. We also acknowledge the validity of Indigenous epistemologies and ontologies.
Lawson recognizes, supports, and respects Indigenous data sovereignty and their right to own, control, access, possess, and protect the information collected from these communities, based on free, prior, and informed consent. We are committed to respect and adhere to nation and community specific protocols by following research data management principles developed and approved by these communities, collectives and organizations such as the First Nations Information Governance Centre’s OCAP (Ownership, Control, Access, Possession) principles, the Inuit Tapiriit Kanatami National Inuit Strategy on Research, and Global Indigenous Data Alliance’s CARE principles. These govern data collection, ownership, protection, use and sharing to encourage inclusive development and innovation, and equitable outcomes. Lawson will ensure that the DMPs are co-developed with these communities, collectives, and organizations, in line with RDM principles and DMP formats that they accept. We acknowledge that they have the right to repatriate the data and this could result in exceptions to the data deposit requirement.
Lawson researchers are also guided through TCPS 2 (2018) – Chapter 9: Research Involving the First Nations, Inuit and Métis Peoples of Canada to ensure that research involving Indigenous peoples is postulated on respectful relationships that encourage collaboration and engagement between researchers and participants. It is a policy that serves as a framework for the ethical conduct of research involving Indigenous peoples in Canada.
It is our institutional responsibility to build capacity for doing this work in an effective way. Lawson is working with the Indigenous Cancer Care Unit Clinical Institutes & Quality Programs and the Office of Inclusion & Social Accountability (Indigenous Health) at LHSC. Lawson is also collaborating with the Office of Equity, Diversity, and Inclusion (EDI) and the Indigenous Health Lab at Western University.
Lawson aims to strengthen Indigenous research capacity by facilitating and promoting equitable access and support for Indigenous students and researchers. Lawson Scientists usually have Western faculty appointments and/or have employment as clinicians with St. Joseph’s. Lawson supports Indigenous researchers with these affiliations and encourages non-Indigenous researchers to co-develop new models for Indigenous research and research training with Indigenous communities. This may include co-developing research questions, agendas, respectful relations, and impactful solutions built on trust, respect, and mutual interests. Indigenous researchers and leadership will help non-Indigenous researchers understand Indigenous perspectives, needs, concerns and aspirations for Indigenous research. Indigenous researchers can help foster positive collaboration with Indigenous partners, collect organic responses from Indigenous participants and provide an Indigenous research lens on the collected information and analyzed data.
These efforts will help us create research data management guidelines for our researchers involved in Indigenous research, assuring the best practices reflect the Four R’s - Respect, Relevance, Reciprocity, and Responsibility.
Lawson Research Institute is governed by St. Joseph’s policies, processes, and procedures that are relevant to various aspects of RDM.
The Lawson RDM Strategy is also intended to align with external requirements and guidance, including provincial, federal, and international laws.
The pertinent policies and documents that were reviewed are listed below.
10.1 London Health Sciences Centre Corporate Policies and Procedures
Acceptable Use of Information Technology Resources |
Breach of Privacy |
Privacy |
Confidentiality |
Electronic Mail (Email) Use |
Acceptable Use of Information Technology Resources |
Records Retention and Disposition |
Remote Access to Computer Network Resources |
Security of Confidential Information and Information Technology Systems |
Use of Cellular Phones and Other Wireless Devices |
Use of Personal Health Information for Research, Education, and Quality Improvement |
Invention - Lawson |
Lawson Approval for Clinical Research |
10.2 St. Joseph’s Health Care London Policies and Procedures
Acceptable Use of Information Technology Resources |
Access and Disclosure of Personal Health Information |
Breach of Patient Privacy |
Clinical Trials Involving Investigational Drugs |
Confidentiality |
Disclosure of Patient Information, Samples, and/or Belongings to Law Enforcement Agents |
Electronic Mail (Email) Use |
Freedom of Information and Protection of Privacy Act (FIPPA) |
Health Record Management |
Interpretation and Translation Services |
Patient Requests to Restrict the Use and Disclosure of Personal Health Information |
Privacy |
Records Retention and Destruction |
Remote Access to Computer Network Resources |
Security of Confidential Information and Information Technology Systems |
Use of Personal Health Information for Research, Education, and Quality Assurance |
10.3 External Strategies/Policies
Acronym/Term | Definition |
CARE | Collective Benefit, Authority to Control, Responsibility, and Ethics |
CIHR | Canadian Institutes of Health Research |
DMP | Data Management Plan |
EDI | Equity, Diversity, and Inclusion |
FAIR | Findable, Accessible, Interoperable, and Reusable |
HSREB | Health Sciences Research Ethics Board |
ITS | Information Technology Services |
Lawson | Lawson Research Institute of St. Joseph's Health Care London |
LHSC and LHSCRI | London Health Sciences Centre and its research arm, London Health Sciences Centre Research Institute |
MAMIC | Maturity Assessment Model in Canada |
NSERC | Natural Sciences and Engineering Research Council of Canada |
OCAP | Ownership, Control, Access, and Possession |
OCREB | Ontario Cancer Research Ethics Board |
QAEP | Quality Assurance and Education Program |
QMS | Quality Management System |
RDM | Research Data Management |
SSHRC | Social Sciences and Humanities Research Council |
St. Joseph’s | St. Joseph’s Health Care London |
Tri-Agency | CIHR, NSERC, SSHRC |
WORLDiscoveries | WORLDiscoveries is the commercialization arm of Western University, Robarts, and Lawson and represents our commitment to protecting and transferring technologies developed by our partners to market. |
The definitions below are as per the Tri-Agency Research Data Management Policy, Frequently Asked Questions, and Social Sciences and Humanities Research Council Definition of Terms, 2021, Government of Canada.
Data Deposit
“Data deposit” refers to when the research data collected as part of a research project is transferred to a research data repository. The repository should have easily accessible policies describing deposit and user licenses, access control, preservation procedures, storage and backup practices, and sustainability and succession plans. The deposit of research data into appropriate repositories supports ongoing data-retention and, where appropriate, access to the data.
Data Management Plan
A data management plan (DMP) is a living document, typically associated with an individual research project or program that consists of the practices, processes, and strategies that pertain to a set of specified topics related to data management and curation. DMPs should be modified throughout a research project to reflect changes in project design, methods, or other considerations.
Indigenous Research
Research in any field or discipline that is conducted by, grounded in or engaged with First Nations, Inuit, Métis or other Indigenous nations, communities, societies or individuals, and their wisdom, cultures, experiences or knowledge systems, as expressed in their dynamic forms, past and present. Indigenous research can embrace the intellectual, physical, emotional and/or spiritual dimensions of knowledge in creative and interconnected relationships with people, places and the natural environment.
Metadata
“Metadata” are data about data—data that define and describe the characteristics of other data. Accurate and relevant metadata are essential for making research data findable. A principle to help determine what information should be included in metadata is the open archival information system model criterion that the information be “independently understandable.”
Research Data
Research data are data that are used as primary sources to support technical or scientific enquiry, research, scholarship, or creative practice, and that are used as evidence in the research process and/or are commonly accepted in the research community as necessary to validate research findings and results. Research data may be experimental data, observational data, operational data, third party data, public sector data, monitoring data, processed data, or repurposed data. What is considered relevant research data is often highly contextual, and determining what counts as such should be guided by disciplinary norms.
Research Data Management
Research data management (RDM) refers to the processes applied through the lifecycle of a research project to guide the collection, documentation, storage, sharing, and preservation of research data.
The Lawson Research Data Management Strategy is a living document that will be reviewed and shared on an annual basis. It will be revised and updated as the institutional and researchers’ research data management requirements, practices, and understanding advance.
In the coming years, Lawson will:
evaluate the changes in policy requirements,
assess evolving institutional RDM training needs
gauge availability of the supporting resources
ensure compliance with the RDM policies and requirements by funders, publishers, and legislative bodies
evaluate technological infrastructure and meet expanding storage requirements – this may include assessment of access on platforms like Borealis for Lawson researchers who are not Western faculty members
facilitate capacity-building events for RDM and DMP development
provide training and educational services and support
examine DMP evaluation criteria and guidelines
consider requirements for data deposit certifications
adjudge implications on the involved stakeholders
consult with community stakeholders to confirm Indigenous data sovereignty considerations
It has been clear that implementation of the institutional RDM strategy requires collaboration on a broader scale. To that end, the RDM Project Team will build additional meaningful connections and identify subject matter experts for future RDM projects. Furthermore, the RDM project team is also proposing to establish a Community of Practice to manage RDM requirements in a sustainable method. This Community of Practice may comprise key stakeholders and experts from groups such as Ethics, Privacy, QA, Indigenous wellness group, Office of Inclusion and Social Accountability, research investigators, research coordinators, and research personnel.
Lawson Research Institute Commitment to EDI-B
Lawson Research Institute (Lawson) is a research community that strives to embed equity, diversity, inclusion, and belonging (EDI-B) within our research environment. This commitment is underscored in St. Joseph’s Health Care London’s (St. Joseph's) institutional 2022-2025 strategic plan entitled “Earning Complete Confidence,” in which, among other goals, we prioritize leading in health research and innovation.
To achieve our goal, we must first acknowledge that research spaces, participation and practices have included, and still include, numerous barriers that limit the full participation of equity-deserving groups and partners in the research environment. The Canadian Tri-Agency Statement on Equity, Diversity and Inclusion (EDI) (1) has acknowledged such barriers and formulated The Canadian Tri-Agency EDI Action Plan (2018-2025)(2) outlining steps to address these in our research ecosystem.
As a health research institute, we are also guided by the Ontario Hospital Association (OHA) Strategic Plan (2022-2027) (3), which prioritizes safe and progressive practices that will benefit its members, system, and organization. Innovative, impactful and transformational research thrives when guided by equity, incorporating diverse worldviews, methods and perspectives.
In accordance with the OHA Strategic Plan (3), we believe that the key to a thriving research enterprise is to embed the values of humility, discovery and passion in our work. We embrace the philosophy of Ubuntu, which can be defined as the essential human virtues of compassion and humanity, and recognize that members of our research community are part of a larger, and more significant relational, communal, societal, environmental and spiritual world. Our mission is to attend to the wholeness of each person – body, mind and spirit – welcoming every member of our research community as a person with a unique set of strengths, lived experiences, support networks, spirituality, and personal goals.
We want to foster the resiliency, well-being, equity, diversity, inclusion and belonging of all members of our research community and thus enhance a thriving research culture where wellness, diversity and a sense of belonging are fostered and the potential and capacity of everyone is supported. We understand that leading research through an EDI-B lens is necessary to achieve research relevance, success and excellence, and this will benefit everyone in the Canadian and the global research environment. (4,5,6,7)
Lawson Research Institute commits to:
• Reviewing and improving our EDI-B specific strategies, policies and procedures (1) to support equitable research practice, and (2) to promote inclusive hiring and retention of diverse talent at the Lawson Research Institute.
• Providing the training and resources for our researchers to embed EDI-B principles and best practices in their research design and implementation.
• Incorporating EDI-B accountabilities into research design and practice competencies to ensure that our research responds to the health gaps experienced by our diverse communities.
• Convening a community of expert practitioners to learn best EDI-B practices to advance equity in research design and practice.
• Developing and launching awards focused on elevating and making visible researchers who champion and incorporate EDI-B best practices in their research as guided by the federal research funding programs (8).
It is equally vital to acknowledge, honour and include Indigenous Knowledges, which long precede Euro-western centred approaches brought to these lands. In accordance with the Truth and Reconciliation Commission’s Calls to Action 18-24 on Health (9), it is crucial to make space for and emphasize the importance of conducting health research in culturally sensitive ways as part of our collective responsibility in working towards reconciliation. We will work in collaboration with key units at Western University, such as the Office of Indigenous Initiatives, the Associate Vice-President Research (Equity, Diversity, Inclusion and Decolonization), and Western Research to ensure The Four R's – Respect, Relevance, Reciprocity, Responsibility (10) – are at the core of our research ecosystems. In partnership with Western, we will: 1) ensure ethical research engagement with Indigenous communities; 2) recognize colonial practices in, and adopt anti-colonial approaches to, research; and 3) work with partners to advance equity, diversity, inclusion, and decolonization in all joint programs, services, and funding initiatives we support.
Lawson Research Institute, the research institute of St. Joseph’s Health Care London, works in partnership with London Health Sciences Centre Research Institute, the research institute of London Health Sciences Centre (LHSC), and Western University to advance health research. Western and LHSC share our deep commitment to equity, diversity and inclusion in health research. Learn more about Western’s and LHSC’s commitment to EDI on their websites (11).
------
References:
1. Tri-Agency Statement on Equity, Diversity and Inclusion (EDI):
https://www.nserc-crsng.gc.ca/InterAgency-Interorganismes/EDI-EDI/index_eng.asp
2. Tri-Agency EDI Action Plan for 2018–2025: https://www.nserc-crsng.gc.ca/_doc/EDI/EDI-ActionPlan-EN.pdf
3. Ontario Hospitals Association Strategic Plan 2022-2027 https://www.oha.com/strategicplan
4. Hong, L. and Page, S. E. Groups of diverse problem solvers can outperform groups of high-ability problem solvers. Proc. Natl Acad. Sci. 2004;101:16385-89.
5. Hofstra B. et al. The diversity-innovation paradox in science. Proc. Natl. Acad. Sci. 2020;117:9284-91.
6. Nielsen, M. W. et al. Opinion: gender diversity leads to better science. Proc. Natl Acad. Sci. 2017;114: 1740-2.
7. Herring, C. Does diversity pay?: race, gender, and the business case for diversity. Am. Sociol. Rev. 2009;74: 208–224.
8. New Frontiers in Research Fund: Best practices in equity, diversity and inclusion in re-search design. https://www.sshrc-crsh.gc.ca/funding-financement/nfrf-fnfr/edi-eng.aspx
9. Truth and Reconciliation Commission of Canada 2012: Calls to Action
10. Kirkness, V. J. and R. Barnhardt (2001). First Nations and Higher Education: The Four R's - Respect, Relevance, Reciprocity, Responsibility. Knowledge Across Cultures: A Contribution to Dialogue Among Civilizations. R. Hayoe and J. Pan. Hong Kong, Comparative Education Research Centre, The University of Hong Kong.
11. Western EDI: https://www.edi.uwo.ca, LHSC Office of Inclusion: https://www.lhsc.on.ca/doc/lhsc_annual_report_2023/launch-of-office-of-inclusion.html